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Monday, July 18, 2011

HEALTH & DECEASE: For thalassaemics, life is a constant struggle!

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SANGEETA BAROOAH PISHAROTY / The Hindu / NEW DELHI, July 16, 2011.

Anubha has been undergoing blood transfusion since the age of three. Photo: Special Arrangement
Anubha has been undergoing blood transfusion since the age of three. Photo: Special Arrangement.

Many patients are pushed around from one hospital to another for transfusion
The life of thalassaemia major patients is an uphill struggle. The recent case of IAS aspirant Sukhsohit Singh being refused a job because he is thalassaemia major has brought the attention back on the patients here suffering due to the indifference of authorities.

The patients suffering from this genetic blood disorder need blood transfusion every 15-20 days. Most Delhi government hospitals have dedicated thalassaemic wards for this but the service is not able to keep pace with the rising numbers. Many complain of being pushed around from one hospital to another for blood transfusion, some even talk of landing up next to bodies at the emergency ward.

Anubha Taneja (30) says: “I have been going to the thalassaemia ward of the Kalawati Saran Children's Hospital (KSCH) since the age of three for blood transfusion. In 2008, we were told we can't avail ourselves of the service anymore as it is a children's hospital.”

Anubha, along with 18-20 other patients, “didn't know what to do suddenly” as getting entry to thalassaemic wards in other government hospitals “is difficult considering they already have their regulars.”

“So, the KSCH sent us to Irwin Hospital. Since it doesn't have a dedicated ward, they told us to get admitted for two days for blood transfusion, which is not practical,” says Anubha, a practising lawyer. On request, the KSCH referred them to its affiliated institution, Lady Hardinge Medical College (LHMC)'s Srimati Sucheta Kripalini Hospital (SSKH).

“Horrible experience”
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Separate ward sought
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Preventable
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